Lexi Update

Just wanted to give you a little update on Lexi. Her mom called me last night and we were on the phone for what seemed like forever but was really only 33 minutes. There was so much information that Jen gave me that I got lost in it all. Wow, I seriously don't know how she does it. I would not know whether I was coming or going.

I also got to talk to Lexi for a few minutes. She was in really good spirits. They may stop over on Thursday after her procedures. I am excited to see her.

Sunday, January 10, 2010 10:38 PM, EST

Hello! As you may have figured or already know, Alexis was discharged last Monday the 4th. You can usually tell when she is discharged because that is when I become so busy I forget to update the log!

Alexis started to feel better on Sunday, and by Tuesday she was her old self again for the most part. There were a few days that she did vomit but we are not sure what that was all about except for yesterday. Yesterday evening she just kept eating and eating until finally she got sick. I did not realize everything she had ate. Ever since she was born this was something we had to monitor closely, however this is not something we have had to keep an eye on in a while!

Alexis has had a pretty good week. She has played hard with Aaron, played in the snow, went shopping with me to Wal-mart and today the 4 of us went to see Chipmunks 2. Alexis and Aaron both really liked it! Afterward we went to El Vaquero for dinner.

Tomorrow is the start of Alexis's long week of appointments. On Monday Alexis will be put to sleep for a bone marrow aspiration. It is in the surgery unit, however it is a very short minor surgery (It still ends up taking all day though!)

Between Tuesday - Thursday, Alexis will have a total of 11 exams/procedures. They are definitely going to keep us very busy. The best part though is that we get to come home each night. The point of all of this is to to make sure that Alexis is completely healthy in all parts of her body before the transplant.

Alexis is still on TPN at night for 12 hours. The good news is that she weighed 40.2 lbs at her clinic appointment on Thursday! She has not weighed this much since before she was diagnosed!

I will try to keep everyone posted during the week.

Take Care,
Jen