Lexi update!

Here is the latest update from Jen, Lexi's mom.

Wednesday, January 20, 2010 8:08 AM, EST

Hi Everyone! For those of you who do not already know our great news, sorry for keeping you under suspense. Last week was extremely exhausting for Alexis and I and we needed some recoup time. Fortunantly, we had a great weekend and did recoup even though we had some visitors.

Anyway, on to the great news. The results of the testing came in. Alexis's bone marrow was negative for cancer the second time in a row! The MIBG scan showed that there was overall improvement in the intensity of the cancer and that there is no further activity in the area that the tumor and lymph nodes were removed. There were still cancer cells inthe bone areas of her legs and arms, but the intensity had gone down. The Ct scan showed positive improvement as well. The best part of the CT scan is that it showed that the swelling from her leaking lymph node is gone! This means that we no longer have to give Alexis an octreotide injection two times per day! Alexis and I were extremely excited about this!! Alexis's urine test showed that the acid that secretes in the urine when you have neuroblastoma was gone! We also learned that since Alexis's weight is 41 lbs the TPN nurse decide to cut back her TPN to every other night! Alexis told me that she was glad because she was tired of carrying the TPN bag around everynight. She said " when I have to get up at night to go to the bathroom I run into the walls with that bag and wake everyone up!". She is so sweet.

Anyhow that was out great news on a sour note the same day I found out that there was something wrong with my car. Originally I was told it was a head gasket but it turns out it is an upper and lower intake gasket. It doesn't really mean much to me other than that it is much cheaper to repair and will require less days being without a car! Hopefully it will be fixed by Thursday. As if I don't have enough to worry about! I guess it is good I work best under pressure, because I have not had much of a break!!

Well I am off to work.

Love,
Jen

If anyone would like to visit Lexi's Caring Bridge Journal website and leave a word of encouragement or a small prayer, feel free.

I just got off the phone with Jen, she was wondering if the Lexi and Aaron could come over tomorrow for another visit. Unfortunately I am sick so that will not get to happen. She also informed me that her stem cell transplant is scheduled for January 27. Please send prayers her way during this procedure. You can leave her family prayers and keep up to date on Lexi's Caring Bridge website.